16 min 34 sec

The Age of Diagnosis: How Our Obsession with Medical Labels Is Making Us Sicker

By Suzanne O'Sullivan

A neurologist explores how modern diagnostic labels and genetic testing are reshaping our identity, shifting the focus from treating illness to managing risk and medicalizing human diversity.

Table of Content

We live in a time where we have a name for almost everything. In the world of medicine, this is often seen as a triumph. Every time a scientist identifies a new genetic marker or a committee defines a new syndrome, we feel like we are gaining ground against the unknown. We imagine that by naming a thing, we can master it. But what happens when the naming process starts to outpace our ability to treat, or even fully understand, the conditions we are labeling? What if our modern drive to categorize every human difference and every vague symptom is actually creating a new kind of burden?

In the following pages, we are going to explore the central argument of neurologist Suzanne O’Sullivan’s work: that we have entered an era where diagnosis is no longer just a medical tool, but a powerful cultural force. This shift is fundamentally changing how we think about ourselves, how we behave when we are unwell, and how we view human diversity. It’s a world where a healthy person can suddenly become a ‘patient-in-waiting’ because of a line of code in their DNA, and where the boundaries of ‘normal’ are constantly shrinking.

Throughout this journey, we’ll see how diagnostic labels can be both a key that unlocks necessary support and a cage that traps people in a cycle of medicalization. We’ll look at the high stakes of predictive genetics, the controversy surrounding broad labels for unexplained illnesses, and the way neurodiversity is being redefined in the twenty-first century. The throughline here is a call for balance. It’s about learning to value the clinical story and the individual context as much as the laboratory result. By the end, you’ll have a clearer sense of how to navigate a world obsessed with labels and how to keep your sense of health intact, even when the medical world tries to tell you otherwise.

What would you do if you could see your medical future decades in advance? Discover how predictive testing for conditions like Huntington’s disease creates a heavy psychological burden.

Explore why some medical conditions become cultural phenomena despite a lack of clear diagnostic proof, and what happens when symptoms are managed on suspicion alone.

As definitions of autism and ADHD broaden, more people are finding clarity, but is the medical system struggling to keep up with the demand?

Discover how the focus of modern medicine is moving toward identifying potential future problems, turning healthy individuals into permanent patients.

Can the way we think about our diagnosis change our physical outcomes? Learn why the concept of a ‘recovery identity’ is essential for long-term health.

With the rise of whole-genome sequencing, we are collecting more data than ever. But are we prepared for the ambiguity of the results?

As we’ve seen, the act of diagnosing is far more than a technical exercise. It is a process that carries immense emotional, social, and even political weight. While modern medicine has given us incredible tools to identify and treat disease, we must be wary of letting those tools define the limits of human experience. A diagnosis should be the start of a conversation about how to live a better life, not the final word on who a person is or what they are capable of.

The throughline of our exploration is clear: context is king. Whether we are looking at a genetic marker, an antibody test, or a behavioral checklist, the result only has true value when it is weighed against the lived experience of the individual. We must resist the urge to turn every human difference into a disorder and every future risk into a current illness. By slowing down the diagnostic process and prioritizing careful, patient-centered observation, we can ensure that labels remain helpful tools rather than restrictive cages.

In your own life, remember that you are more than a collection of data points or a list of symptoms. When faced with medical uncertainty, look for providers who value your story as much as your scans. Seek support that focuses on your strengths and your environment, not just your deficiencies. Ultimately, the goal of health isn’t just the absence of a label—it’s the presence of a meaningful, connected, and resilient life. Let your labels be a guide to getting the help you need, but never let them become the boundary of your potential.

About this book

What is this book about?

The Age of Diagnosis examines the delicate balance between the power of medical naming and the risks of over-labeling. As diagnostic criteria expand and genomic testing becomes more accessible, we are entering an era where healthy people are treated as patients-in-waiting and everyday human struggles are framed as clinical conditions. Neurologist Suzanne O'Sullivan argues that while a diagnosis can provide relief and access to care, it can also solidify uncertainty into a permanent identity. Through cases of predictive genetics, controversial conditions like chronic Lyme, and the rising rates of neurodiversity labels, the book promises a critical look at how our obsession with labels may be making us sicker. It challenges us to look beyond the test result and return to a more holistic, context-driven approach to human health.

Book Information

Rating:

Genra:

Mental Health & Wellbeing, Psychology, Science

Topics:

Critical Thinking, Human Nature, Neuroscience, Social Psychology, Sociology

Publisher:

Penguin Random House

Language:

English

Publishing date:

March 18, 2025

Lenght:

16 min 34 sec

About the Author

Suzanne O'Sullivan

Suzanne O'Sullivan, MD FRCP, is a consultant neurologist and clinical neurophysiologist whose work at UCLH/The National Hospital for Neurology and Neurosurgery has made her a leading voice on functional and psychosomatic disorders. Widely recognized for clear, compassionate science communication, she won the 2016 Wellcome Book Prize and has written the best sellers It’s All in Your Head, Brainstorm, and The Sleeping Beauties.

Ratings & Reviews

Ratings at a glance

4.5

Overall score based on 123 ratings.

What people think

Listeners describe this as a stimulating and demanding examination of contemporary healthcare, even if views are mixed regarding the author’s polarizing approach to chronic conditions and neurodiversity. Furthermore, many listeners value the way the text poses vital inquiries into "diagnosis creep" and the hazards of turning standard human differences into medical issues. They also highlight the perceptive evaluation of predictive genetics, where one listener observes that the Huntington’s disease section provides a profoundly compassionate perspective on the conflict between certain knowledge and optimism. Finally, they note that the writing functions as a potent catalyst for discussion, with one reviewer labeling it an "incredibly important" volume that pushes the public to reconsider its dependence on labels.

Top reviews

Mattanee

Few books manage to be this unsettling while remaining profoundly compassionate toward the human condition. O’Sullivan expertly dissects the phenomenon of "diagnosis creep," where the boundaries of what we consider "normal" are constantly shrinking to accommodate new labels. Her analysis of how we've started pathologizing everyday sadness and social friction is timely. I was particularly struck by the section on predictive genetic testing—it makes you realize that "certainty" in medicine is often an illusion that breeds more anxiety than relief. The writing is sharp, though the sentence structure can feel a bit breathless at times. It’s a necessary challenge to the "more is better" approach to modern healthcare. Truth is, we might be making ourselves sicker just by looking for names for our imperfections. A vital, if polarizing, read for anyone navigating the current medical landscape.

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Brooklyn

O’Sullivan has written a vital manifesto for the modern patient that refuses to offer easy answers. She explores the "recovery identity" with such nuance, arguing that sometimes a diagnosis can become a cage rather than a key. The way she contrasts the definitive horror of Huntington’s with the murky, expanding definitions of ADHD and depression is masterfully handled. I found the section on how society demands these labels—for benefits, for school accommodations, for work—to be the most illuminating part of the book. It’s not just a medical issue; it’s a cultural shift. Her prose is direct and often quite blunt, which I appreciated, even when the subject matter became uncomfortable. It’s rare to find a doctor willing to speak so candidly about the limitations of their own profession. This book should be required reading for anyone entering the medical field.

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Pete

The chapter on Huntington’s disease stayed with me long after I closed the cover. O’Sullivan writes with a level of empathy that I haven't seen in many medical texts, particularly when discussing the agonizing choice between knowing your fate or living in hope. She tackles the "age of diagnosis" not just as a medical trend, but as a crisis of meaning. We use these labels to legitimize our pain because we live in a world that doesn't know how to handle suffering without a code. I loved her insistence that a doctor's ears and eyes are still more powerful than any genetic sequence or high-tech MRI. It’s a call to return to a more human form of medicine. The pacing is excellent, and she manages to make complex neurological concepts accessible without being patronizing. Truly a standout non-fiction title for the year.

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Tippawan

After hearing so much buzz about this, I finally got around to reading it, and wow—it's a punch to the gut. O’Sullivan isn't just criticizing medicine; she’s criticizing our collective inability to accept that being human is often uncomfortable. Personally, I found her take on predictive medicine to be the most chilling part, where we spend our "healthy" years waiting for a disease that might never manifest. It’s written with a clarity that is rare in the medical field, and it manages to be both a critique and a celebration of human variance. Some might find her tone a bit defensive, but I saw it as a doctor trying to protect her patients from the harm of over-medicalization. If you want a book that makes you question everything you think you know about health, this is it. It’s incredibly important for our current cultural moment.

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Tanyaporn

Is more medicine always better? That is the haunting question at the center of this provocative work by neurologist Suzanne O’Sullivan. She dives deep into the messy world of "incidentalomas"—those tiny anomalies found on scans that might never cause a problem but lead to a lifetime of unnecessary treatment. While I didn't agree with every point, especially regarding neurodiversity, her argument for prioritizing clinical judgment over a battery of automated tests is compelling. The book is well-researched, though it occasionally drifts into a defensive tone when addressing potential critics. Frankly, the distinction between a "roadmap" diagnosis and an "identity" diagnosis is one we need to discuss more openly in our society. It's a dense read, but one that rewards those willing to have their assumptions challenged about what it means to be truly healthy in an age of constant screening.

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Orawan

Picked this up after seeing Chris Van Tulleken’s blurb on the cover, and it definitely lived up to the hype, though it's bound to ruffle some feathers. O’Sullivan is a neurologist who isn't afraid to ask why we are so desperate for medical explanations for every quirk of our personalities. The style is very readable, almost like a series of medical mysteries, but with a philosophical edge that keeps you thinking. Look, I get why people are upset about her take on neurodiversity—she can be quite sharp—but her point about "medicalizing difference" is an important one. We are losing our tolerance for human variance. Some chapters felt a bit repetitive, and the lack of commas made me re-read a few sentences to catch the meaning, but the core message is solid. It’s a brave look at how we’ve replaced community support with clinical codes. Not perfect, but worth your time.

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Dylan

As someone who works in the healthcare sector, I found this perspective on "the power of suggestion" and "illness identity" incredibly refreshing. O’Sullivan doesn't shy away from the fact that our diagnostic tools are often used as sticking plasters for deeper societal issues. The way she details the transition from "variant of normal" to "disorder" is chillingly accurate. However, I do think she occasionally overlooks how life-saving these labels can be for those who have been gaslit by the system for years. The chapter on "Syndrome Without a Name" was a highlight for me, offering a compassionate look at the limbo patients inhabit when science fails to provide a box for them to fit into. It’s a dense, intellectual journey that asks us to value clinical nuance over the binary of "sick" or "healthy." A bit academic in spots, but the anecdotal case studies keep it grounded in reality.

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Chamlong

We live in a culture obsessed with labels, and this book serves as a much-needed reality check. Suzanne O'Sullivan argues that by constantly expanding diagnostic criteria, we are actually diluting the resources available for those with the most severe forms of illness. It’s a controversial stance, but she backs it up with some pretty staggering statistics about cancer over-diagnosis and the rise of "asymptomatic" diseases. My only real gripe is that she doesn't spend enough time on the role of social media or the crumbling state of public health services, which I think drives a lot of this self-diagnosis. Still, her point about "pathologizing the environment" is spot on. We look for a chemical imbalance when we should be looking at our broken social structures. It’s a challenging read that will make you rethink your last Google symptom search.

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Benjamin

This was a bit of a slog in parts, mostly due to some questionable structural choices. Why on earth are Lyme disease and Long Covid shoved into the same chapter with a tenuous link about self-diagnosis? It felt like the author had a specific axe to grind and bent the narrative to fit her thesis. To be fair, her exploration of Huntington's and the ethics of knowing your genetic future was absolutely top-notch—deeply moving and intellectually stimulating. But then you get to the ADHD and Autism sections, and it feels like she’s speaking a completely different language, one that ignores modern understandings of the spectrum. It’s a book of two halves: one brilliant and empathetic, the other dismissive and bordering on "quackery" in its suggestions for the cure for depression. I’m giving it three stars because the good parts are truly excellent, but you have to filter out a lot of bias.

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Wit

Not what I expected at all, and frankly, quite damaging. While O’Sullivan raises some fair points about over-testing in oncology, her dismissive attitude toward Long Covid and ADHD felt incredibly reductive. To suggest that these conditions are largely psychosomatic or fueled by a "need for labels" ignores the lived reality of millions. The chapter where she lumps Lyme disease and Long Covid together felt particularly lazy; it’s a bizarre editorial choice that undermines the scientific rigor she claims to uphold. I felt a palpable lack of empathy for patients who have spent years fighting to be heard by doctors who share her exact biases. If you’re currently struggling with a chronic illness or navigating a new neurodivergent diagnosis, please be careful with this one. It feels like a step backward for patient-centered care, placing blame on the individual rather than looking at the systemic failures of our healthcare system.

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